Bronchoscopy Results for Aria

Almost two weeks ago the bronchoscopy revealed that Aria has Laryngomalacia. Here is what else we found out.

VISIT TO THE PULMONOLOGIST on FRIDAY (9-7-12  - The day after Aria's 5th birthday)  

Good News
     75% lung function - improvement over last time, it means her Advair medication is working
     Cultures were clear (no bacteria growing in her lungs) - we expected this since she was on antibiotics

Bad News
     Fat in her lungs - this means that probably during the night when she's sleeping she has reflux and food particles are getting into her lungs, which turn into fat
     Starting new med - to help deal with the reflux but this is on top of the other medicine she's already taking for reflux
     Inflammation in her lungs - confirms that she has asthma
     

VISIT TO THE IMMUNOLOGIST on TUESDAY (9-11-12)

Good News
     He's a great doctor
     He confirmed that we made some good decisions in the past
     He's prepared to fight the insurance company to get what's needed for Aria
     
Bad News
     IVIG Treatments - We're hoping to do it by SubQ
     We have to fight the insurance company to get this approved. We're told that our insurance company is one of the worst to deal with when it comes to this treatment.
     Start another round of Prednizone (steroids to help lung function) - she's starting to get sick again


We're just praying for quick approval from the insurance company and that we can start the treatments soon. We're also praying that we can do the SubQ so that we can do the treatments at home, otherwise we'd have to do a "port" and this means another surgery and more discomfort for our little girl and regular hospital or doctor visits for the treatments.