UPDATE - Feb.'14
In the past five months, Aria has had four surgeries.
In Oct. '13, she had a fundoplication. I talk about it here. Future Surgeries
In
Nov. '13, she had her 2nd chiari brain surgery but this time they cut
the dura (the sac around the brain). It was at this time the doctor
realized that she also suffered from hydrocephalus (too much water
pressure on the brain).
In Dec. '13, she was back in
the hospital because she was leaking spinal fluid through the incision
that's in the back of her head. She was there a couple days to watch for
infection. Later in the month she started developing lumps near her
incision but we hoped it would go away.
In Jan. '14,
Aria went through another Chiari brain surgery to fix the spinal fluid
leak in the back of her head and she spent two weeks in the hospital
with a temporary shunt in the small of her back hoping to allow the
brain to adjust to the hydrocephalus. We chose this option because the
other option was to put a permanent one in her head.
Feb.
'14 saw us back in the hospital because she had developed lumps in back
of head again and within two days of telling the doctor they put her
back in the hospital and put the shunt in her head, making this her
fourth brain surgery. The good news is that they didn't have to open up
the back of her head again and in three months they'll check to see if
the shunt can be removed. We didn't know this was an option when we
first heard about shunts but we're glad that if her body can heal and
deal with her hydrocephalus it can be removed.
A friend started a medical fundraiser for us to help us with our hospital expenses called Love for Aria Hope. The video of Aria that our friend put together was very sweet. It brought tears to my eyes.
We're also very thankful to those who blessed us financially during this major event in our lives.
We're even more thankful for your prayers for Aria's healing. Please keep praying for her.
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