We met with the neuro-surgeon today for Aria's Chiari malformation. Aria did not want to cooperate with the nurse practitioner or the surgeon, although the NP had better luck and the surgeon couldn't look at her at all and just ruled that our daughter is strong-willed. That may be the case but her behavior lately is not normal for her.
Anyway, the surgeon did not want to do surgery right away but wants to have a sleep study done first to see how much pressure the brain is putting on the spinal column to see if it's really necessary because the surgery is very involved and has a long recovery associated with it. To say the least, it won't be pleasant and she'd like to avoid it if possible.
In the meantime of waiting to schedule the sleep study, our daughter will be seeing a gastro-intestinal doctor tomorrow and we still need to schedule a visit to the lung doctor.
It's no wonder she throws fits at the doctors' offices. She's tired of it all. We're very tired of it all also and just wish she wasn't so sick but we'll keep trying. We know God has a plan for her and there is a purpose for all of this.
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